Winston, 54 from London had to give up work in 2018 to care for his mum full time.
Winston’s mum, Florence, was diagnosed with dementia in 2014. Over the next couple of years, Florence gradually got worse and Winston ended up spending more and more time with her until eventually, in 2018 he was looking after her every day and has been ever since.
Becoming a carer has come with its challenges for Winston and has had a big impact on his life.
“I go out when I can, but my last holiday was in 2018. You find that when you’re living with someone with dementia, it’s hard to get out and do things because my mother relies on me so much.” says Winston.
Winston has also faced feelings of mental exhaustion from his caring role, especially with the unpredictability of his mother’s illness.
“I think the biggest challenge is trying to get someone to understand how difficult caring for someone with dementia is. You don’t know what’s in store, you don’t know how they’re going to react. As soon as you get over one hurdle, there’s another one.”
Since being registered with Carers First, Winston has been able to benefit from some of the support groups, especially ones that offer support to those that care for someone with dementia.
“We can talk about our experience, and I’ve found them really helpful. It helps to get things off your chest to people who understand.” Winston tells us.
While his caring role has not come easy, Winston’s relationship with his mum is still a positive and strong one.
“I can still talk to her and we still go out in the car. She’s comfortable when she’s with me.” Winston adds.
Winston hopes things will improve further soon, but says patience is the key when becoming a carer.
“You’ve got to have patience above everything. If you’ve got that, the rest will follow.”
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